RaDaR Ethics Extension
The RaDaR rare disease registry has been granted a five year recruitment extension from the South West – Central Bristol Research Ethics Committee. This extends recruitment through until 09/10/2024....
View ArticleRaDaR recruitment update – November 2019
As of 1st November 2019 there are 24,588 patients in RaDaR from 102 hospitals. In October there were 444 new recruits, making it our best month this year. Recruits by cohort and hospital can found...
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Staffing update
Our Operations Officer Melanie is leaving us on Friday 1st November after 7 1/2 years with RaDaR and RareRenal. She helped re-launch this website (twice!) and supported a massive growth in recruitment...
View ArticleRaDaR recruitment update – February 2020
As of 3rd February 2020 there are 25,722 patients in RaDaR from 103 hospitals. In January 2020 there were 350 new recruits.Recruits by cohort and hospital can found below. Recruits by cohort Recruits...
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Care coordination research opportunity
COordiNated Care Of Rare Diseases (CONCORD) is a research study which aims to investigate how services are currently coordinated for rare conditions and how they should be coordinated in the future....
View ArticleRaDaR recruitment update – August 2019
As of 1st August 2019 there are 23,568 UK patients in RaDaR from 100 hospitals. In July there were 413 new recruits. Recruits by cohort and hospital can found below. Recruits by cohort Recruits by...
View ArticleRaDaR recruitment update – September 2019
As of 1st September there are 23,814 UK patients in RaDaR from 101 hospitals. In August there were 252 new recruits. Recruits by cohort and hospital can found below. Recruits by cohort Recruits by...
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