Primary Hyperoxaluria Webinar, 15th August
The Oxalosis & Hyperoxaluria Foundation (OHF) and Dicerna Pharmaceuticals invite you to participate in a webinar on Tuesday, August 15, 2017 at 16.00 hours GMT to discuss research presented by...
View ArticleRaDaR Ethics amendment submitted
Following a review of our revised consent documents by NHS Digital, we have just submitted the latest RaDaR amendment to the South West – Central Bristol Research Ethics Committee. The main changes...
View ArticleRaDaR Ethics Amendment Approved
The latest RaDaR amendment has now been approved by Ethics. The main changes concern clarification that RaDaR consent covers Patient View Sign-up, subject to local availability, and that patients...
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15,000th RaDaR patient recruited!
The 15,000th UK RaDaR patient was recruited on the 10th October 2017. This is a fantastic achievement and a testament to all the hard work and support that the 87 currently recruiting hospitals have...
View ArticleExpressions of interest for new guidelines
We are seeking expressions of interest for Renal Association Members to write new guidelines on the following topics: Medical management of stone disease Pregnancy and renal disease To apply, please...
View ArticleRaDaR: The Next Ten Years
On Wednesday 28th February 2018 a joint patient and clinician event was held at the Queen Elizabeth Hospital, Birmingham to celebrate RaDaR’s achievements to date and consider where we go in the next...
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New Patient Information Leaflets
The Renal Association’s Patient Information Sub-committee aims to develop and maintain a high quality patient information resource for use by kidney doctors, patients, families and carers in the UK....
View ArticleRaDaR Portfolio Support Extended
We are delighted to announce that the NIHR portfolio support for RaDaR has been renewed for the 2018-19 financial year, thanks to the generous support of Kidney Research UK. This provides accrual...
View ArticleVacancy – Rare Disease Committee Chair
The Renal Association invites expressions of interest from its members for the position of Chair of the Rare Diseases Committee detailed below. The deadline for submission of a formal expression of...
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RaDaR newsletter, Spring 2018
The latest issue of the RaDaR Newsletter contains information about the recent NIHR Portfolio extension and details of up-coming events.
View ArticleNew Rare Disease Committee Chair
We are pleased to announce that Dr Danny Gale, Senior Clinical Research Fellow, UCL Centre for Nephrology, will take over from Dr Detlef Bockenhauer as the Chair for the Renal Association’s Rare...
View ArticleNew RaDaR Cohort – MGRS
RaDaR is now open to a new Cohort of patients – Monoclonal Gammopathy of Renal Significance (MGRS) – which covers the following conditions: AH amyloidosis AHL amyloidosis AL amyloidosis C3...
View ArticleADPKD Information & Support Day – 15th September 2018 – Cambridge
Place: Frank Lee Centre Hexagon, Addenbrooke’s Hospital, Cambridge, CB2 0SN Time: Saturday 15th September 2018, 9.30am to 4pm Hosted by: Professor Fiona Karet and the PKD Charity Talks and workshops...
View ArticleRaDaR Newsletter – Summer 2018
The latest issue of the RaDaR Newsletter contains information about our compliance with the new General Data Protection Regulations (GDPR) and forthcoming events for HNF1B and ADPKD patients.
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ADPKD Guideline for review
The draft of a new Renal Association Clinical Practice Guideline on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD) is now...
View ArticleCystinuria Patient Day – Saturday March 30th 2019 – London
A National Cystinuria Patient Day will be taking place on Saturday March 30th 2019 at Guy’s Hospital, London The event is free to attend for patients and relatives but registration is essential via...
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ADTKD Patient Information Day Summary
A summary and photos of the recent ADTKD/UMOD Patient Information Day can be found below. ADTKD/UMOD patient information day summary
View ArticleFibromuscular Dysplasia Patient Information Day – 19th January 2019 – Salford
UK and Ireland’s First Patient Information Day on Fibromuscular Dysplasia (FMD) will take place on Saturday 19th January 2019 at Salford Royal Hospital Agenda The event is free to attend. To register...
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