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ADPKD Guidelines
A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD),...
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NURTuRE Study for Nephrotic Syndrome patients
NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland...
View ArticleRaDaR Newsletter Winter 2018
The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
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ADTKD Patient Information Day Summary
A summary and photos of the recent ADTKD/UMOD Patient Information Day can be found below. ADTKD/UMOD patient information day summary
View ArticleFibromuscular Dysplasia Patient Information Day – 19th January 2019 – Salford
UK and Ireland’s First Patient Information Day on Fibromuscular Dysplasia (FMD) will take place on Saturday 19th January 2019 at Salford Royal Hospital Agenda The event is free to attend. To register...
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ADPKD Guidelines
A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD),...
View ArticleClik here to view.
NURTuRE Study for Nephrotic Syndrome patients
NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland...
View ArticleRaDaR Newsletter Winter 2018
The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
View ArticleClik here to view.
Fibromuscular Dysplasia updates
The Fibromuscular Dysplasia (FMD) Rare Disease Group have produced a update on their recent patient information day in Salford and a review of current literature. FMD group update
View ArticleInternational consensus guide on Fibromuscular Dysplasia
The first international consensus guide on the diagnosis and management of Fibromuscular Dysplasia has recently been published. This can be accessed at: Journal of Hypertension Vascular Medicine
View ArticleRetroperitoneal Fibrosis Patient Involvement event – Saturday 2nd March
The Retroperitoneal Fibrosis Rare Disease Group are hosting a Public and Patient Involvement event on Saturday 2nd March in London in order to work together with patients and their carers to learn...
View ArticleExtension of RaDaR’s Portfolio support
Thanks to the generous support of Kidney Research UK, RaDaR will maintain it’s presence on the NIHR’s Research Portfolio until 31/03/2020. This ensures that recruiting sites will continue to receive...
View ArticleADPKD Patient Information Day – Saturday 30th March, Aintree
The PKD Charity will be hosting the next ADPKD Patient Information Day on Saturday, 30 March 2019 from 10:00am – 16:00pm at Aintree University Hospital Lower Lane, Liverpool. L9 7AL The event is free...
View ArticleVasculitis Education Day
We are pleased to announce the inaugural UK and Ireland Rare Disease Group Vasculitis Education Day will be held on Thursday May 16th 2019 at Salford Royal Foundation Trust. Programme The day is...
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World Kidney Day 2019
Help us bring together millions of people across the world and unite with one powerful voice for kidney health awareness.World Kidney Day in the UK is led by the Kidney Charities Together group...
View ArticleRaDaR Newsletter Spring 2019
In celebration of World Kidney Day the latest edition of the RaDaR rare disease registry newsletter contains important information about our NIHR Portfolio extension and details of forthcoming patient...
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